Rabbit Hole Alert. Ohhhh….boy. If you’ve been here at the blog for long, you may remember how obsessed I was a few years ago with the BBC series called The Detectorists. I’ll still aver that it was one of the all-time best ever television series. Then, just yesterday I discovered The Lost Words. Low and behold, the artists of both have worked together. No surprises there. Remember, ultimately it will be the artists who save us.
This beautiful series explores the tender world of the autistic genius, of how sweet friendships are, and how difficult romance (or any form of emotional intimacy) for those who hang by a thread on society’s hem…it’s about paying attention and persistence and most of all it’s about dreaming.
Renowned actor Rachel Stirling apparently petitioned her friend Mackenzie Crook for the role of his wife as she wanted to participate in the series. And when her mother, Dame Diana Rigg, heard about the series she asked to be in it. So she plays the part of Rachel Stirling’s (Becky’s) mother. Between the 2nd and 3rd seasons Dame Diana Rigg sadly died. So Mackenzie Crook re-wrote Season 3 to include her character’s death. The talent that gathered to participate in this series brings so much for our enjoyment, not the least of which was Johnny Flynn writing the musical score. You’ll laugh and cry, but you’ll never feel the same about these goofy characters or the nerdy brainiacs they represent. My own autistic genius child went right out and bought himself a metal detector after watching this! It reminds us that the ordinary and invisible in our culture are precious beyond measure. It is a gem.
Last month was a blur. I spent the month in bed with pneumonia. Last week I had a clear chest exam. This week my OPD has flared up. No rest for the weary I guess. For those of you who don’t know, OPD is a spectrum disorder. Most of us have some degree of it. You might be surprised to learn that it is only slightly less prevalent in women than men, and that your risk is 37% higher if you live in the United States.
The symptoms of OPD (Obnoxious Personality Disorder) cause more harm than previously recognized here in the states, and are more easily identified in European countries frequented by American tourists. The expat population is currently being studied for their seeming immunity. Although one must wonder, if they didn’t somehow suffer the adverse affects of living around OPD, would they have moved abroad in the first place?
Symptoms often include an inflamed sense of entitlement, frequently followed by “the Karen effect.” One of my first clues of the flareup came around the need to wash dishes. Housework is often a trigger for me. I shouldn’t have to do it. Then there is the dilemma of having to cook for myself, but recent improvements in meal delivery options have helped with that.
The biggest trigger for me is the lack of high quality entertainment on the television. I subscribe to a dozen or more self-help streaming services and have thousands of movies and television series available to watch. Yet I am so picky that I can seldom find anything satisfying to quell the symptoms. I am frequently irritated, even at inanimate objects.
If you, too, suffer from the crippling effects of this disorder, know that there are resources available. Dial 1-800-I-BLAME-U, or try pulling your head out of your behind after a long, warm bath. This Netflix series will also help:
We did it! We did it! We survived January! Woohoo…let’s celebrate already. It is still brutally cold outside, but I do sense the days getting a bit longer, and we have had some intermittent sunshine the past few days. It makes such a dramatic difference in the way I feel. Apparently I have terrible seasonal affective disorder (SAD) and I think I always have had it, since childhood.
I’ve had a lot of things since childhood…ha! Autism and ADHD and anxiety and…and…a great big open musical heart and a pretty good mind and some artistic talent…and best of all, an innate curiosity about how life works and a sense of wonder about the world. I wouldn’t want me any other way.
And in my deep and endless curiosity I have always asked, myself and you: what if? What if, in fact, we are right where we need to be doing exactly what we need to be doing? What if, as Einstein posed, everything is a miracle? I’ve always known the truth of it – as have you – somewhere deep inside. And the 238 days of January just reminded me. I need reminding, seemingly constantly.
I need reminding that the world was made to be free in. I need reminding that all life is precious. I need reminding that I am enough – just right, in fact. Not too big, too small, too smart, too stupid, too much. And most especially, I all too often need reminding – SO ARE YOU. You’re just right.
I’ve left far too many people behind. They silently disappeared in the rear view mirror when I moved away. They ghosted me out of anger and frustration. They threw up their hands in defeat and walked away. They drank themselves into oblivion. I told them off and never looked back. They died of cancer. Their heart gave out. Some I didn’t really know. And some I didn’t know how to lose and I still haven’t caught my breath. All just right, right where they needed to be, doing exactly what they needed to be doing. It’s hard to trust, but it has to be. It has to all be sacred. Nothing else makes any sense.
What if…what if we wake in the afterlife, in the many mansions prepared for us, and find we brought all our dreams with us? What if, as I hope, we get to meet everyone again under different circumstances, in peace? Without expectations or need. Just love…
…just love. These are wild historical times we are living in. Everything gets overwhelming every day. And yet something inside us recognizes the moment as a choice. Love or fear. Trust or doubt. Yes or no. If every choice, every thought, every action boils down to yes or no it suddenly becomes straightforward. Yes to love. No to everything else. That doesn’t always mean it is easy, but it is simple. What if…we were made for a time such as this? What if it is all just right right now? What if…we didn’t know we were ready?
How to drive me to contemplate murder? Talk to me. It’s just about that simple. Okay…not really. Although, I wouldn’t risk it first thing in the morning if I were you. Dear Jen, who I consider a kindred spirit, explains how her introvert-ness works. She is right on. But I must differ on a couple of points. I went through a nervous breakdown (or breakthrough?) about a decade ago. I’ve written about it here in previous posts. I slowly and painfully extricated myself from Manville, where I was being held hostage in the House of Curmedgeons. I divorced my husband, my father, and my brother all at once. I didn’t want to. But they were killing me.
They were so dysfunctional and I had tried absolutely everything I could think of to try to make that household work for all of us. And one day something snapped inside me, and I was done. Done. In many ways I think of it as a near death experience; at least that’s a great metaphor. Subconsciously I knew it was them or me, and I chose to live. I chose me.
I was actually rescued by a friend who bought a house for me to live in, in her heroic effort to save my life and entice me away from my family. It worked. I literally credit her with saving my life, and she knows this. She was watching me struggle to find a place to rent with my 2 dogs, very little money, and an insatiably needy family of addicts who were sucking the life out of me.
It broke me. At least, my nervous system. I thought that some time to heal would result in my becoming “nice” again. All I needed was some uninterrupted rest and I’d bounce back. It hasn’t happened. I had stayed far too long.
And when I recently admitted that, yes, I am autistic, and yes, I am ADHD, that changed me also. It has served to explain my entire life. I’ve been burnt out on caretaking and people pleasing – probably since high school. Maybe earlier. I became the parent in my childhood home around the age of 10. I often tucked my drunken parents into bed around 2:30 a.m. after loosening their clothes. And then I got back up a few hours later to help dress my younger siblings for school. I was in survival mode, and I would live in survival mode until….well, I’ll have to keep you posted.
As wise woman Jen of Silver and Solo alludes to here, there is not enough solitude. There just isn’t. There never will be in this lifetime. I overdid it. Big, noisy family growing up. Big, noisy retail and service careers. I was on duty every waking moment. I’m off duty now. It was hell getting here, and I have remorse about how it was accomplished. It was not pretty, or nice. I have no use for nice. I’m a good person, but nice won’t be happening.
You always know where you stand with me. If you are in my life, know that you are invited, cherished, respected. Without any patience left in my energy reserve, I am asking for your patience. And sometimes there will be months where I disappear. When I was younger I’d laugh naively about this, telling people I’d “gone south for the winter…” Know that I’m doing the best I can. Please take a number.
Please remember, always click on the blog heading for the updated version as I often edit after hitting publish…
The cat woke me around six a.m. His bowl was empty. This is my favorite time of day, just as the sun is coming up. But I hadn’t slept well and I really didn’t want to get up. My son was already in the kitchen getting ready for his work day. He’s been staying here since his relationship broke up. Feeling he had no other choice, he left her with the house they bought together, her teenagers, the dogs they adopted, his dreams, and oh yeah, much of his self worth stayed behind, too. He has continued to be as supportive of them as he possibly can be, physically, emotionally, and financially. This has required considerable patience on my part (let alone my friends and therapist) – but then, I don’t want to be the mother-in-law who thinks her son can do no wrong. I’ve had one of those.
The day he called and asked if he could come here I felt a huge sense of relief. Finally. Watching the abuse he seemed determined to cope with was nothing short of painful. He was mimicking the scapegoat role I had so effectively demonstrated for him my entire life. Everything about us must be wrong because God knows we never did anything right. But perhaps some healing could finally happen. We are a multi-generational family of survivors – survivors of alcoholism, physical and verbal abuse, and blatant narcissism. Our awareness continues to grow as our healing unfolds.
He’s been here longer than either of us expected; the better part of two years now. It has not been easy. But most days I am grateful for this time to get to know him as an adult, to spend time together investigating family history, to address our mental and emotional dysfunction, to have the opportunity todo the healing work we both need and deserve. I’m in my seventies, he’s in his forties, and for the first time in our lives we are safe. We have a safe place. I wonder where that will lead us.
Most mornings I am up hours before him or any hint of daylight. I feed the cat first (the boss of me), make coffee and head back to my cosy room with a book. If I haven’t fallen back to sleep, I hear him in the kitchen but leave him in peace. Well, I leave me in peace, because let’s be honest – I am far too easily irritated when my thoughts are disrupted before I’m ready to talk. But this morning I wandered out and made us both coffee. Here’s why he is one of the few people (okay, maybe the only person so far in this life) I’ve ever been able to live with: he is funny. He is blessed with my mother’s sense of humor. My brother had it, too. I was not so blessed. He is funny right from the get go when his feet hit the floor. Wow that is impressive!
My auDHD does not allow me to think that fast. So when I caught myself scowling this morning, I circumvented my crabbiness by saying, “Help me out here, please. My face is stuck,” revealing my frown. I had just sat down at my laptop. He simply replied with a directive: “Hello, Dolly by Louis Armstrong.”
Little did he know it would bring tears. I was ten years old the year my mother took me to see the musical at the Fisher Theatre. It starred Angela Lansbury. God, growing up in Detroit in the 1960’s was magical. As a privileged white child, of course. But back then what did I know…
When my son was 15 I began teaching him to drive. At that time you could get a “student permit” one year before you were old enough to get your license, but then you could practice driving as long as there was an adult in the car. Driver’s training was a required class for all sophomore high school students. That year for Mother’s Day my card contained a Backseat Driver’s License, officially signed by then Secretary of State, Mac U. Nervus. My son is nothing if not funny! I carried that in my wallet for years, and I do not know what happened to it. Probably wore it out.
My son is a good driver, which I cannot say about my former husband. He reminds me of the cartoon character Mr. Magoo. He was declared legally blind about the age of 2 and wore thick “Coke bottle” glasses taped to his head throughout childhood. And with a ‘Little Man Tate’ genius IQ, he graduated college at the age you and I were graduating high school. In retrospect, we now know he is autistic. I used to marvel at how I could rattle off numbers to him, my own human calculator, and he could add them in his head and give me an accurate total faster than the computer. But he couldn’t change a lightbulb. That task, like many others you and I do daily, would frustrate and overwhelm him.
Shortly after he and I met lasik laser surgery became readily available. With that miracle and a regular pair of glasses he qualified for a driver’s license. Just because the state issued him one does not mean he can drive. He’s a menace on the road, but he has never been in an accident. I’m sure he’s caused a few…
Last week we met for lunch in the city where he lives, about an hour from me (yes, by design.) I had mentioned in a phone call that I had an appointment that was bringing me in to town. During our lunch conversation he asked about the tires on my new (to me) car and offered to purchase a set of tires if I would follow him to the shop up the road. You know where this is going? Ha! Wait for it…
We met at his favorite restaurant, Big Boy. Leaving the restaurant, we would have to turn left onto a busy 55mph five lane highway. He pulled right out into oncoming traffic and zoomed out ahead miles before I could safely turn…and…he lost me. He would say I lost him, and he’s right – I can’t keep up. But as I frantically searched for the tire store and finally turned in, relieved to be alive, he called. Where the heck was I? What was taking me so long?! And I looked and looked and couldn’t see him anywhere. I sat still two minutes knowing he would call back. He did. He couldn’t see me, either. It occurred to me to ask him what he could see (we’ve been at this over 30 years) and of course, we were NOT in the same location.
He had driven to the place of my appointment – NOT the tire place at all. My appointment had nothing to do with him and we had not discussed it. (I had mentioned it in our previous phone conversation.) It was an entirely spontaneous decision on his part, but he thought I was right behind him, and would follow him in…so, no need for communication. But now he was angry with me; I hadn’t kept my part of the agreement – which was to follow him. And now I would have to turn left out into heavy traffic twice again, once toward the appointment location where he waited for some unknown reason, and again leaving for home. It was nerve wracking to say the least. By the time I got there about 20 minutes later I declined his offer to wait for me and then go buy new tires. By this time I was a nervous wreck. He wasn’t. He was just confused. After all, he was just trying to help. If this sounds a bit like senility, I must tell you that it’s been this way the entire time I have known him. It’s just SOP with Magoo. Obviously he must be an enlightened master because he is cool and collected in the midst of chaos. Even if he did cause it.
Here I sit at seventy wondering why my nerves are shot. I’m not saying this is my former husband’s fault; far from it. He was one in a loooonnnng line of crazy-makers I have lived with all my life. You know about crazy-makers, right? (We have one running for President if you need an obvious example.) People who have some innate talent for wreaking havoc all around them without being affected. They’re everywhere; every family has them. My family was full of them. Grandfather, father, aunt, sister to name a few. Of course I attracted them in my adult relationships; they were familiar. The less susceptible you are to gaslighting, the more covert their passive aggressiveness becomes. But I’m by no means immune, and maybe never will be.
As I have talked about in former posts, I’m not havoc-ing it any more. It takes a varying degree of upset for me to register the crazy making, but the moment I catch it happening, I’m out. I will still love them, just from a distance. Will my nerves ever heal? I’ll keep you posted. Meanwhile, Going Home is my new old theme song, from the greatest movie soundtrack ever written. Close your eyes and listen. Everything will be alright.
Just in the last few years myself and my only child, now middle-aged himself, have realized that we are on the autism spectrum. And probably ADHD as well. Neither of us have been clinically diagnosed, but I’m sure that wouldn’t be hard to do. It has certainly provided a missing piece of life’s puzzle for me.
My son and I enjoy watching certain slow moving television shows together. One of our favorites was The Detectorists, arguably one of the best television shows ever written and produced. Absolutely brilliant. It’s 3 seasons and one Christmas movie ( “why not more? she cries!” ) It is poignant, irritating, and hilarious. With a little mysticism mixed in for intrigue. As fans will attest, there is some magical ingredient that made us fall in love with life while watching; your heart can’t not open. All the characters are fabulously quirky, but the main character seems obviously autistic, and he is clairaudient. He thinks he needs a metal detector, when in fact he is the detector. Our kinda show.
So I wasn’t at all surprised when my son bought himself a metal detector and began exploring the local beaches. It’s only been a few short months, and nothing much as of yet…just a bunch of pull tabs and washers. What is up with all the washers? Then I found Annie Lighthart and she explained why she always has a washer in her pocket:
“If I have helped one fainting robin unto it’s nest again, I have not lived in vain.” – Emily Dickinson
A Painterly Home 