Category Archives: chronic fatigue

Aug6

a new religion called NOPE

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“STOP letting your mental health be damaged by systems that were never designed to protect it!” – Sheila Hammond

If someone asks you if you’ve heard the latest news, and you think, “Dear God, please let it be aliens,” you are not broken. Sheila Hammond has made the YouTube channel I wish I’d thought of. She is funny, and she is tellin’ it like it is! She’s done offering her sanity to systems that profit off her exhaustion. Amen, sister. Amen.

You can care about the world and you can set boundaries. You can opt out of chaos without opting out of your values. You can disengage without being in denial. You can scream into the void…and log off for a nap. Personally, I am done with risking participation in anything likely to jerk me around emotionally. Ain’t nobody got time for that.

In recent posts I have written about losing friends and family members because I won’t attend the protest march (what you resist persists) or join the group or contribute to the cause or watch the news. Don’t get me wrong, I respect them immeasurably. Their heart is in the right place. If I feel compelled to do so, I do know how. As far as I know I still have an FBI record from being arrested in the protests in Detroit during the 60’s and 70’s. Meanwhile that isn’t how I’m most effective. That does not mean I am sitting here doing nothing – but it is amazing the changes you can implement silently from your sofa once you get focused.

It’s scary at first to realize your personal power. However, you have to pull your spirit back into your body and listen. In order to overcome the addiction of culture you have learn to stop the performance art you called life for the past decades, otherwise you won’t know your authentic voice when it speaks. And it does. I hope you’ll join the me in the religion of NOPE. Because as Sheila says, sanity is trying to stage a comeback.

“I command my spirit into my body in full at this time.” – Carolyn Myss, Anatomy of the Spirit

May I suggest we nurture a song worm today:

Aug3

one way only

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Success! My rain spell worked. Which is to say, I left my laundry hanging out on the line all night. Never underestimate me.

A beautiful friend came to visit yesterday afternoon. I was a bit verklempt. I almost cancelled, but I really wanted to see her. It’s been too long. The overwhelm was only because it came at the end of an insanely busy week. By insanely busy I mean 2 things: 1) I had at least one activity scheduled every day, and 2) I never got a nap all week. I usually nap every afternoon.

As it happened this past week I had 2 medical appointments scheduled which had been weeks on the calendar, and I had to cancel them for more pressing medical issues which required immediate attention. I also had to cancel lunch with my friend on Tuesday as I couldn’t drive to meet her. She was concerned about me and drove the hour out to my house on Saturday.

My house is very purposely located on a spit of land that elbows out into Lake Michigan, affectionately referred to by locals as The Land of Oz. I say purposely because I moved here precisely because it is a destination of some determination, ie; not on the way to anywhere. Nobody just drops in. I detest dropper-inners.

When I moved out here on this precipice of life and beauty I had to drive to the post office for my mail. They didn’t deliver mail here just outside the village limits. Yes, that was 2018. I had to join with 3 neighbors and petition the post office for mail delivery, clear and level a path next to the road and install mail boxes. We get mail delivery now, but not necessarily daily. They will deliver your mail when they darn well get around to it. It’s a privilege, and don’t you forget it. I do appreciate it. I know they are short staffed, and I appreciate having a local post office. Many villages around here do not.

Friday I received a new deck of tarot cards in the mail, so I opened them after lunch with my friend. We sat on my very long, deep sofa (a.k.a. Mom’s Cosmic Healing Sofa) and shuffled, talking, laughing and kvetching…and we each drew a card, which took our mundane conversation in a deeper direction.

One of my many withdrawals in recent years has been from the practice of reading and channeling professionally. Because, well, people. Most people don’t really want to be challenged to grow, to face their shadow, to look at the habits no longer serving them. They don’t want to sit in the present moment until the tears come. It isn’t comfortable. It is, however, priceless. The tarot is so beautifully designed for exactly this work, and I cannot use it otherwise. I mean, sure, you can use it to access any information you want to know. I can astral travel anywhere and spy on anyone. I won’t. I can psychically answer all your questions. I won’t. Those are parlor tricks. As Geraldine Jones would say, “that is not my job!”

During her visit, we talked about my friend’s daughter-in-law, who has also been living with chronic Lyme disease. She is much younger than I and has suffered far worse for much longer. We spoke about healing, but my compassionate friend asked about how I deal with pain and not being able to function some days. I told her it has been my greatest teacher. When I am ill (sometimes on the bathroom floor at 3 a.m.) I pray. It’s the only help. I pray with each breath. All I say is: “Thank you.”

Thank you for this body. Thank you for this pain in my liver. Thank you for my life. Thank you for my home, for this bed, for this sweet feline companion, for my beautiful son. Thank you for my big, violent, fu#ked up family – and for the fight in them. Thank you for friends, long-standing and patient, brand new and welcoming. Thank you…for the purpose this illness serves though I do not understand it. Thank you.

Thank you…”so that I can have this one way, along with every other way, to know that I am here.”

Jul7

walkin’ my talk…

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For some odd reason, this July 4th holiday has been a wakeup call for me. It isn’t that I didn’t know that it’s the middle of the summer…and sorta the middle of the year…but this year it hit me hard: it’s half over! I’ve never made resolutions at the beginning of a year, but I did have some ideas of how I wanted to make changes in my life. I do have goals for myself, not the least of which is improved health.

My health has not improved. It had been a struggle. I wake most days in quite a bit of pain. Headache, nausea, stiffness and pain in my back and hips primarily. But it moves around. It seems to “settle” in the joints I slept on. I’ve been referred now to a rheumatologist. But there are things I can – and will – do to help myself naturally. Some of them are as simple as getting into a warm shower immediately upon waking. Well, after feeding the cat, of course. It actually helps a lot. But I had gotten out of this habit, drinking coffee and checking emails and watching YouTube videos instead. And putting off a shower until after I had done housework or yard work. And taken some Tylenol. Tylenol is not a good habit.

It isn’t working. Let me rephrase that: I am not working. My body is not cooperating with my plans and my commitment to said plans gets delayed…and delayed. My life is on hold until I feel better. Insert rolling eye emoji here…

Pain is a formidable opponent. So is depression. And they often hang out in the same circles. It’s time for some new companions. Like determination and curiosity…and hope. Where to start when you really just want to go back to bed? Start small. But start. Change a habit, maybe two. Return to the basics of self care. As much as I hate to admit it, I have to go right back to basic basics. I have no long term practice of self care. In fact, I’ve had to figure out what that buzzword even means. I was never taught.

So, I will get right up and into a warm shower every morning. Then I will make my bed. I will drink a glass of water before coffee. In fact, one big change is leaving out the cream and drinking my coffee black. It sucks all the joy out of life, but I can do it for a time. If I don’t put milk in my coffee, it is easy to give up dairy. That comes with some dietary changes, again small, but significant. I’ve pretty much given up sugar already and cut way back on carbs. I don’t buy bread anymore; I do eat some gluten-free pasta.

I’ve been writing intermittently. Waiting for inspiration to strike; it isn’t coming. I will go back to writing daily. Daily. Morning pages for starters. I know this works. WHY don’t I do what I know works??!!!! And then, we WALK. Julia Cameron stresses it constantly. Christ, she’s written books about it. Just fu*#ing WALK already! I had an ah-ha this morning as I headed out the back door – I feel guilty about going for a walk, as though it’s self-indulgent if I’m leaving behind housework and a messy yard. That’s where my energy should go. And there I go, shoulding on myself. There is NOTHING self-indulgent about going for a walk. It’s basic self care.

Jun29

“you’re my friend kind of…”

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“I am restless. Things are calling me away. My hair is being pulled by the stars again…” – Anais Nin

This morning I told a friend that I must have accidentally opened some energy portal – and it has mistakenly been taken as availability by several needy people in my life. Perhaps you have experienced this phenomena. After weeks or months of silence people are all calling all at once, wanting time, attention, and even money. You sent out a psychic signal and they got the message that you might be hangin’ around waiting to hear from them…or some cosmic signal telepathically invited them all to call the same day. Weird.

According to Melody Beattie (Codependent No More) who I respect immeasurably, I am categorically a master codependent. In recovery now! In recovery! Agggghhhhhhhh….a lifelong practice, I’m sure. It was not until I finally – and painstakingly – extricated myself from narcissistic abuse at the age of 60 that I even began to have any appreciation for solitude. Oh, I had been pursuing it all of my life. Literally since childhood. But I would not achieve it until I lived alone, for the very first time, in my 60’s. And now it is precious. In fact, required.

And I am still naive about protecting my solitude. About keeping the demons of narcissism and codependency (yes, they are psychic siblings) at bay. IF there is any smidgen of hope to live a creative life, I must defend my boundaries and channel my inner Hushpuppy. I must face the mythic Aurochs. I gotta take care of mine.

This week was my brother Ward’s birthday. He would have turned 64. That same day my neighbor and friend Hal died; he was my age, 71. He reminded me of my brother. They both understood animals better than people. Soft spoken and kind, in many ways they were too good for this world. I am grieving and sad. I miss my brother. Maybe that was the psychic memo I sent out. But I am not lonely. I am not afraid. I am strong and infinitely guided; “blessed and highly favored.”

And so I will keep to myself for now. I apologize that I don’t respond quickly; I am currently unavailable. I will read and draw and “potter” about the garden and hang with my cat. Heal. And carry on.

Jun24

the temple of my belonging

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Well, it’s been Crisis Intervention 101 here again. S’always sumpin, innit? But we’re through it intact and life is calming down. And cooling down, finally. Although we are still at 98% humidity. Normal for Michigan this time of year. As we say here, we only have two seasons – winter and July. July just began a week early. The crowd of tourists are all back in town. So I avoid town. They do serve to remind me to get out and enjoy the beauty around me.

This is the draw, and I’m so close to the shore that I can see the tip-top of a 400′ sand bluff from the bottom of the driveway (above the trees). It’s about 1/4 mile to the lake as the crow flies, or a mile downhill to the beach. I love my views, downhill in 3 directions. I have one immediate neighbor to the north, but this is a weekend summer home for them. Because I don’t have many windows on the north wall, I often realize they’ve been and gone only because they set out their trash bin at the street for Monday morning, and I gladly roll it back up the drive for them. They do many nice things for me, like mowing the back 40. I may struggle financially, but I am wealthy beyond measure surrounded in this beauty.

If I’m honest, it is a constant worry that I no longer seem to have the physical strength or financial means to maintain my home or property. We are both tired and worn. So often I will look at the real estate online to see what I might find that would be easier to grow old in. But every time I become overwhelmed with sadness. I love my home; I just want to take proper care of it. I love where I live. The ashes of my sweet pups are buried in the garden, their final romping place. My elderly kitty is the mighty king of his domain and I’d love him to live out his days here. It’s quiet and peaceful and safe. And the roof has started to leak…

I’ve often wondered why home means so much to me. Other people I know seem far less attached emotionally to the place where they dwell. In my dreams I am frequently in my childhood home on the Detroit River, long expanse of lawn lined with 3-story-high willows swaying in the breeze. Hundreds of peony shrubs perfuming the air, sunrise over the river. In a surreal way I felt somehow more connected to the natural surroundings than the people I lived with. There’s more than a few therapy sessions needed to unpack that realization!

And in hindsight I confess that I stayed far too long in an abusive marriage because I didn’t want to give up my home. Home. It’s really all I have ever longed for…a home of my own. Heaven for beginners.

Jun4

petrichor and lilacs

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My son says, “It is always a Michigan June in heaven.” It’s been a chilly spring. The heat is running this morning in the first week of June. We had dramatic thunderstorms last night and it’s still raining. But I keep a window cracked so I can smell the rain soaked earth. And the lilacs are blooming.

The lilac shrub out back is half the size of the house. I suspect it was planted around the time the house was built, which was 1955. It was traditional at that time to plant lilacs next to the driveway to welcome guests. The driveway has since been moved and the lilacs have flourished. They are spectacular.

I am in bed this morning with a vase full of them on the nightstand, coffee and my laptop, writing to you. Finally, having again been chronically ill for the last few weeks. I am better, but not well. This time I cannot avoid the doctor’s argument that I need to travel to see a specialist. I can cope with pain, but my eyesight is at stake. And let’s face it – the most qualified and well intended medical professionals still don’t have much to offer. The rheumatologist recommends I take a biologic. It is a treatment for symptoms; I want a cure. I’m stubborn like that.

But this morning I lay here breathing in the smell of rain and lilacs. The well fed fat cat is trilling and rolling around upside down on the floor. My son is here making blueberry pancakes and bacon for breakfast. Don’t tell me this isn’t heaven.